Friday, April 26, 2013

Could it be... he is allergy free!!??

Well, we finally did it... we did a food challenge with Erik for his dairy allergy. It was one of the more scary things we have had to do with him at home. Our allergist was confident that he would be fine, but it took us about 6 weeks to work up the courage and have our timing right to actually test him. The directions were simple... give him a 1/2 ounce of milk and watch him for to see if signs develop within 30 minutes. Then, give him and ounces and watch him for another 30 minutes. Needless to say it was a LONG hour. BUT he did great!! Not one sign on his body, no hives, no swelling, nothing. So now we are to simply start adding it in to his diet. So much easier said than done! We are seeing some digestive sensitivities, like gas and a slightly raw bum, but nothing else. So we are taking it easy and letting him decide if he even likes the flavor of milk. If he incorporates dairy into his diet and we don't have to use his epi-pen for a year then we will be epi-pen free!!

We have scheduled an appointment with Erik's eye specialist to discuss surgery to straighten his eyes. We don't know much about what it may or may not be able to do about his vision, but we will at least get information. Plus, if we do the surgery it will be one less "thing" that is different. That will be nice for when he gets older.

We were hoping to move Erik to his next step with his braces (a brace the size of a high top shoe), but his PT and the orthotic team thought he needed a little more time. His PT would like him to master a few more skills in the braces he has (stand up from being seated without assistance and squat to pick stuff off the floor). He is getting really good at picking stuff off the floor, so now we are focusing on him standing up without assistance. This one is hard because he stabilizes himself with whatever he uses to stand up with. It will just take more walking and core building, but he can do it.

We are so proud of his progress... at school he has a little routine in the morning. He starts in one section of some bins and takes out a few toys and puts them on top of the cabinet, then he walks around to a huge cardboard play house where he goes inside and plays, he then ends by going to the "kitchen" and plays with the cupboards and the refrigerator. His teacher says he has a buddy that he "meets" in the kitchen and they play together! I can imagine him opening and closing, opening and closing, and opening and closing the cabinets.

At daycare, they offer a huge variety of food for lunch. This has been a huge blessing, because they have gotten him to eat a ton of different food. Who knew Erik would eat lima beans, or baked beans, or pasta. We have taken the things they do there and slowly incorporated them at home. We are very happy about his increase in variety. It gives us encouragement that he will eat more than just pureed food for the rest of his life. He is now down to one meal a day that incorporates baby food!

I realize this is a rather unemotional post, but there is so much progress to be discussed :)


(This is Erik with Flat Nolan - they went to check out an airplane at Dad's work. They are sitting in the cockpit)

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