Sunday, June 26, 2011

I apoligize fore being such a horrible blogger... I am realizing that things are happening, but don't seem significant in the moment and then time goes by and I say to myself, "Man, I should have blogged right when it happened." So once again, I will try and catch you up...

Well, we no longer have a ped dr. A little frustrating, but God knows what he is doing. In the end, she was the PERFECT dr. for us for the time we were with her. A week after we learned she was no longer with the practice, she called us from her home to check on us and once again give her wonderful guidance to move us just a little bit further with giving Erik the best. She introduced us to a program called "Child Find". Child Find helps give families the resources needed to help their children with disabilities (i.e. physical therapy, occupational therapy, speech therapy, etc). She also gave us a list of questions to help us find a good ped dr. Two interesting things she suggested were, we should apply for medicaid to help pay for some of Erik's stuff and to start applying for disability. Talk about a reality check. It's hard to swallow or even admit that Erik would actually qualify. Neverthless, she's right, once we get to Denver, we will begin the long and lovely process of applying to both.

On the medical side, we have received our first positive test results. The biggest reason we aren't jumping up and down having a party and thanking God is because we aren't convinced it's the end. We believe, as well as the neurologist, that there is more. Nevertheless... drum roll please...... the diagnosis they are working towards is called "Stargardt". So, our journey continues as we move closer. It is a HUGE step, but not the final landing. Sean and I will be getting tested to see if either one of us is a carrier.

Most recently, we have had our evaluation/consultation with the Child Find team. They found that Erik is 49% delayed. Which is about what we thought. So he is about the age of a 10 month old. However, we had a breakthrough with Erik. He started clapping, giving high five's, and he has progressed to graham crackers!! But the biggest breakthrough of them all..... Erik is CRAWLING!!! Of course it's done in Erik's special way, not like other typical babies, but he is on his hands and knees and moving across the floor. It is pretty noticable that something switched with Erik. We are blessed to see him progressing and amazed at his character.