Spoke too soon...

Today was a hard day... a few tears of frustration, to say the least. So, Sean took Erik to the pediatrician for his regular checkup; here's what we found... 1) Erik has an ear infection! who knew. NO signs at all! Poor kid, who knows for how long. 2)Next.. Erik has cold hands most of the time, even to the point of turning purple. We are to talk to the neuro about what this could mean. So a call was made to the neuro to see if this is something he needs to be seen for sooner than April 7th. 3) Next... Erik's pediatrician is concerned about how his spine is developing. His spine is bulging in his mid to low back. We can especially see this when he sits. So the ped dr. will be ordering x-rays and we are to ask his PT if she sees anything that might be of concern and get her opinion. 4) Next... the dr is worried about Erik's weight, he lost even more since the geneticist appt (which is weird, because I could have sworn he was gaining weight). She suggested putting him back on the special formula he was on before - Sean was great and told her the allergist said there is still milk in the formula, so the dr will be calling the allergist to decide what will be best. (way to go Sean - good lookin out)! I think that's it... Talk about stressful, ugh! We now have added more things to our list, just as we thought things were settling down to normal. Lord, hear our prayers...

Waiting... waiting... waiting...

We are now in waiting mode. We received a 4 page report from the general geneticist that was basically a recap of everything we discussed. But there is some good news. Out of the 14 blood tests sent to a lab, results for 5 of them came back as negative or within normal ranges, just as the dr had suspected. From what we could tell, the proxisomal test the "scary" one - Zellweger's, came back negative. So we are waiting to get more results and hear from the metabolic geneticist.

In the meantime... Erik went to his first occupational therapy session. He did great, but she made him work. He worked on grasping and transferring from one hand to the other. He also worked on moving from sitting to his knees. He got frustrated but he did good overall. And now all week he's been making the same movements from his bottom to his knees. Not fully onto his knees but making the movements to the position. Very good stuff!

Erik continues to "awaken". We are so impressed with his interaction and communication. We have been a little frustrated with his weight gaining, but we are keeping the hope that he is making progress. We have learned through the allergist that when our diets change and our bodies are getting rid of the "bad" stuff, they will lose water and fat. So we were reassured it was "okay", but it's hard to feel ok, when we've had to think about his weight since he was born. That was last week... this week he seems chunkier and feels like he's heavier. Does this happen to everyone or is it just us?

Anyway, not much to report, but Erik is doing great and we are excited to see what else he can do!

It's the simple things...

It was an exciting night at the Livermore home tonight... we were sitting at the table finishing up dinner and Erik in his highchair, providing us with great entertainment. Sean had a fabulous idea to pull out the fruit pieces (small pieces of freeze dried fruit). We put them on his tray and he started playing with them, which isn't too uncommon, but that's about all he does, play and quickly loses interest. When I say play, it means pushing them around with his fingers, maybe getting one stuck on his palm, but not knowing its there...hence the quickly losing interest part.

Well tonight, he had a piece of banana in his hand and he attempted to bring it to his mouth!!! This is a first. Not only did he get it in his hand, he felt the tray to find it, all by himself. That's right no help from mama. We were so excited, but we couldn't cheer too loud (so we did a whisper cheer). We didn't want to scare him since he was doing SO good. YEAH Erik!!! GOD is GOOD...